Patient- and Family-centered Care
The Intestinal Rehabilitation Program’s regular clinic sessions provide families with the opportunity to meet with our multidisciplinary team all in one visit to develop and maintain short-term and long-term treatment plans for your child. During the visit, you may undergo laboratory testing, have intravenous lines and/or feeding tubes checked, and ask questions about your child’s nutrition.
At each appointment, patients and families may meet with:
- Gastroenterologist: a physician with dedicated training and experience in the management of nutrition and gastrointestinal tract and liver diseases.
- Pediatric surgeon: a physician who specializes in the surgical correction of digestive tract problems.
- Registered nurse care coordinator: a registered nurse that helps manage each patient’s overall care, including scheduling, insurance issues and pharmacy and supply issues.
- Pediatric registered dietitian: a nutrition expert that monitors and evaluates each patient’s growth and nutrition.
- Clinical social worker: a psychosocial professional that helps the child and his or her caregivers cope with health issues, provides supportive counseling and connects families to resources and community support.
- Registered nurse: a registered nurse who can check intravenous lines, discuss line care with the family, draw blood for laboratory assessment, or assist with other procedures as needed.
We are also able to offer referrals to wound-care specialists, as well as occupational, feeding and physical therapists if patients require further care.
What We Treat
The Intestinal Rehabilitation Program treats children who have malabsorption for a variety of reasons including:
- Short bowel disease
- Intestinal failure and severe gastrointestinal dysfunction
- Inflammatory bowel disease
- Certain types of cancers or side effects from cancer treatment
- Chronic vomiting
- Chronic diarrhea, dehydration and weight loss due to malabsorption
- Chronic pseudo obstruction.
