Free 24/7 Nurse Advice Line: 844-GET-CHOC.
Life After the NICU
While your baby is in the NICU, you will probably long to be home together as a family. When you are given the word that your baby will be discharged, your care team will be celebrating the news with you. Remember, you will always be part of the CHOC NICU family. We welcome visits and updates, and are here for you and your family as you continue on your journey.
Your medical team will discuss follow-up appointments that your baby may need after discharge. Depending on your baby’s needs, they may be seen at:
Stories of Hope after the NICU
https://blog.chocchildrens.org/im-thankful-choc-year/
https://blog.chocchildrens.org/fighting-through-gerd-bowie-finley/
https://blog.chocchildrens.org/landons-life-saving-jejunal-atresia-surgery/
https://blog.chocchildrens.org/a-surprise-heart-defect-diagnosis-in-utero-teddys-story/
https://blog.chocchildrens.org/interstage-program-quinns-story/
https://blog.chocchildrens.org/alicias-story-repairing-a-right-sided-congenital-diaphragmatic-hernia/
Volunteering in the NICU
We welcome volunteers who are excited to make a difference in the lives of our patients and staff. Our NICU volunteers help by working at the reception desk and supporting the unit secretary. Volunteers who sign up to work in the hospitality department also get a chance to work in the NICU, as well as other hospital units.
The NICU also has special, hand-selected volunteers who assist nursing staff with one of the most important aspects of each infant’s treatment: cuddling. While our nurses would love to be able to cuddle our patients all day, our cuddlers free up our nurses to perform their many other responsibilities while still providing your baby with human touch when families are not available. The cuddler program is very limited due to high interest. Volunteers must sign up for another area of the hospital first, and then join a waiting list to transfer to the cuddler program when a spot becomes available. Additional training is required.
Learn more about volunteer opportunities and fill out our volunteer form. Someone from the volunteer program will reach out to you to discuss our opportunities.
NICU Family Advisory Council (NFAC)
Our NFAC is a partnership among family caregivers that have experienced the NICU and CHOC NICU staff. The NFAC meets monthly to review and contribute insight to the clinical, program and support services offered within the NICU. This unique collaboration allows for a better understanding of the experiences and needs of NICU families; further enhancing the quality, safety and care for families.
NICU Family Advisory Council Volunteer
A NFAC Volunteer is a family caregiver who has experienced the NICU, been out of the NICU for a minimum of 8-12 months and has demonstrated interest in partnering with CHOC NICU staff to improve the patient and family experience. A NFAC Volunteer is someone who can offer constructive ideas for change and has a special ability to help NICU staff and physicians better understand the patient and family perspective in the following ways:
- Constructively share insights and information about their experience
- See beyond their personal experiences
- Show concern for more than one issue
- Listen Well and respect the perspective of others
- Speak comfortably in a group with candor
- Work in partnership with others
Volunteer Expectations
- Commit and meet volunteer onboarding requirements
- Honor a one-year commitment
- Attend monthly meetings
- Engage in fundraising events
For more information contact:
Diana Hurtado
NICU Family Support Program Coordinator
dhurtado@choc.org / 714-509-4932
