Life After the NICU
Neonatology Referrals
While your baby is in the NICU, you will probably long to be home together as a family. When you are given the word that your baby will be discharged, your care team will be celebrating the news with you. Remember, you will always be part of the CHOC NICU family. We welcome visits and updates, and are here for you and your family as you continue on your journey.
Your medical team will discuss follow-up appointments that your baby may need after discharge. Depending on your baby’s needs, they may be seen at:
- High-Risk Infant Follow-Up Clinic
- NICU Bridge Program
- CHOC specialty offices
- CHOC primary care offices
Stories of Hope after the NICU
Healthcare
The Carpediem system: Revolutionizing care for neonatal renal failure
Discover how CHOC uses the advanced Carpediem system for continuous renal replacement therapy to save the lives of patients.
CHOC Pediatrica
Healthcare
Dr. Peter Anderson, globally known expert on newborn brain development, joins CHOC and UCI
Dr. Anderson specializes in identifying ways to improve the outcomes of ill neonates and implementing interventions to optimize brain growth and neurodevelopmental outcomes.
CHOC Pediatrica
Critical Care
Leading research into early rehabilitation for neonatal strokes
Neonatal stroke may lead to cerebral palsy, but early rehabilitation can limit disability. CHOC researchers are at the forefront of improving outcomes.
CHOC Pediatrica
Neonatology / NICU
Cord closure: Sutureless gastroschisis repair at CHOC
Sutureless gastroschisis repair at CHOC allows infants to avoid anesthetization and ventilation and produces better cosmetic results.
CHOC Pediatrica
Neonatology / NICU
CHOC to host global NeoBrain conference this November in Anaheim
The world’s leading neonatologists who want to learn more about the newborn brain will gather at NeoBrain: An Interactive Educational Forum.
CHOC Pediatrica
Healthcare
The causes and prevention of diagnostic errors in medicine
A CHOC expert discusses the frequency and risk of diagnostic errors in pediatric medicine, and discusses processes to prevent them.
CHOC Pediatrica
Neonatology / NICU
Dr. Terrie Inder spearheads newborn research program at CHOC
Renowned neonatal-perinatal researcher Dr. Terrie Inder inspires discovery at CHOC as the new chair of the Center of Neonatal Research.
CHOC Pediatrica
Heart / Cardiology
Fetal Care Center team gives newborn with very rare congenital heart condition a fighting chance
The multidisciplinary, expert fetal team from CHOC and UCI gives infants, like Damian with ectopia cordis, the best chance at survival.
CHOC Pediatrica
Neonatology / NICU
CHOC enrolls patient in international clinical trial to test anti-seizure medication in newborns
CHOC selects newborn patient as candidate for international study to test the efficacy of Lacosamide in the treatment of neonatal seizures.
CHOC Pediatrica
Support the NICU
Support services make a world of difference for families during their NICU stay. Donate to the CHOC Foundation and help us ensure families continue to receive the support they need. Donate to the NICU or donate items from our wishlist.
Volunteering in the NICU
We welcome volunteers who are excited to make a difference in the lives of our patients and staff. Our NICU volunteers help by working at the reception desk and supporting the unit secretary. Volunteers who sign up to work in the hospitality department also get a chance to work in the NICU, as well as other hospital units.
The NICU also has special, hand-selected volunteers who assist nursing staff with one of the most important aspects of each infant’s treatment: cuddling. While our nurses would love to be able to cuddle our patients all day, our cuddlers free up our nurses to perform their many other responsibilities while still providing your baby with human touch when families are not available. The cuddler program is very limited due to high interest. Volunteers must sign up for another area of the hospital first, and then join a waiting list to transfer to the cuddler program when a spot becomes available. Additional training is required.
Learn more about volunteer opportunities and fill out our volunteer form. Someone from the volunteer program will reach out to you to discuss our opportunities.
NICU Family Advisory Council (NFAC)
Our NFAC is a partnership among family caregivers that have experienced the NICU and CHOC NICU staff. The NFAC meets monthly to review and contribute insight to the clinical, program and support services offered within the NICU. This unique collaboration allows for a better understanding of the experiences and needs of NICU families; further enhancing the quality, safety and care for families.
NICU Family Advisory Council Volunteer
A NFAC Volunteer is a family caregiver who has experienced the NICU, been out of the NICU for a minimum of 8-12 months and has demonstrated interest in partnering with CHOC NICU staff to improve the patient and family experience. A NFAC Volunteer is someone who can offer constructive ideas for change and has a special ability to help NICU staff and physicians better understand the patient and family perspective in the following ways:
- Constructively share insights and information about their experience
- See beyond their personal experiences
- Show concern for more than one issue
- Listen Well and respect the perspective of others
- Speak comfortably in a group with candor
- Work in partnership with others
Volunteer Expectations
- Commit and meet volunteer onboarding requirements
- Honor a one-year commitment
- Attend monthly meetings
- Engage in fundraising events
For more information contact:
Diana Hurtado
NICU Family Support Program Coordinator
[email protected] / 714-509-4932